tag:blogger.com,1999:blog-1789010040768841744.post8929353256035428962..comments2017-05-03T13:25:30.887-07:00Comments on Pahz Lives with Fibro: I don't know if the Disabled Guy still thinks I'm "exaggerating the pain" after today.Pahzhttp://www.blogger.com/profile/12877861050356247528noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-1789010040768841744.post-63981020318159741222010-07-31T19:20:43.616-07:002010-07-31T19:20:43.616-07:00Thanks. Its good to know I'm not alone. People...Thanks. Its good to know I'm not alone. People like my husband don't understand that there's comfort, even a small amount, in knowing there are others. <br /><br />I do have to say, SLIGHTLY in his defense, part of his problem is the stroke. He doesn't respond properly to stressful situations. I'm not sure he remembers me healthy, I've been a medical mess for about five years now.Pahzhttps://www.blogger.com/profile/12877861050356247528noreply@blogger.comtag:blogger.com,1999:blog-1789010040768841744.post-7695092760676354192010-07-31T19:07:40.267-07:002010-07-31T19:07:40.267-07:00Patty, I have fibro too. It started with me with ...Patty, I have fibro too. It started with me with a sensation much like the one you describe. It was in my neck and down my left arm. I thought I had a pinched nerve. I took Vicodin like candy, and would still sit up nights and cry, just a little bit, to myself under my breath. Couldn't lie down all the way, couldn't get to sleep. IT was awful. That when I started the round of Doctors and neuro and pain and spine specialists, that eventually led to my diagnosis.<br /><br />I get some "skin issues" with my fibro too. I don't usually have that phantom itch, thank GOD, though I do know a couple of other fibro sufferers who do. However. All my clothes must be cotton, and fairly loose-fitting. I pretty much live in knit t-shirts (the soft, thin kind like from Old Navy), and long cotton skirts, or loose-fit khakis; jeans are too heavy a fabric. I also wear all my undergarments inside out - i cannot STAND to have any seams touching my skin. So my socks, underwear, and even bras are all inside-out - and they all must be cotton only; no nylon, no satin......<br /><br />Oh, and my husband, to his everlasting credit, has NEVER suggested openly to me that he thinks I'm exaggerating any pain. He remembers what I was like before I became ill; my energy, my stamina, my strength, and he knows I would never choose to live like this.<br /><br />So, anyway, none of this offers you any help or anything; just wanted to say I've been there, adn I sympathize!Menziehttps://www.blogger.com/profile/06807735453489594529noreply@blogger.com