Pages

Showing posts with label cold. Show all posts
Showing posts with label cold. Show all posts

Monday, December 16, 2013

Pahz Whines About Her Fibro

Well, that IS what this blog is for, isn't it? The name of this blog shouldn't be "Pahz Lives with Fibro", it should be: "Pahz Whines about Fibro and doesn't help anyone with any REAL information because she's not a medical professional and is definitely not a source of info on this issue" but that was too long for me to Photoshop into a banner image. (I really need to redo my banner, I've gotten so much better at Photoshop since I made that thing).

But here we are, going on 1 AM on Tuesday morning. (as opposed to "1 AM on Tuesday afternoon"). I went to bed a little after 10 PM. I had a decent enough day. Halfway through the day, it started snowing and of course, I went outside and took macro photos of snowflakes. I stood out there, hunched over the gas grill we never use, holding my camera up with my hands in my super-cozy fingerless gloves. I wasn't outside for very long, but the snow was the heavy, wet kind and after only a few minutes, my fingers were so cold and stiff I could barely move them. And they had reached that point of cold where touching my skin hurt, so I figured it was time to go inside. (I later found out that our high was 16° Fahrenheit, which would account for how I got so cold, so quickly). I spent the rest of the afternoon and evening trying not to get up and move around. After being seated for several minutes, any moving resulted in sharp pain in all my muscles.

When I went to bed, I said to the Disabled Guy (who doesn't give a damn about it) that: "At least today's weather explains why I haven't slept good for two nights" and he muttered an "uh-huh" as I walked up the stairs. I got settled into bed, my super-soft fleece blankets all situated and I was getting that all-over warm cozy feeling when things took an ugly turn. As my body settled into the bed, gravity increased its harsh grip and felt like it was trying to pull me through the bed to the floor. Every time I tried to relax my muscles (I start at my feet and work my way up- its a sleep inducing exercise I learned when I worked nights), they'd tense up harsher than they had been before I tried to relax. I changed my position, which caused me a grimace-and-whine-inducing bout of pain.

I ended up fairly comfortable on my back, propped up slightly by my pillows and with my arms at my sides. Every single joint in my body throbbed in agony with every heartbeat. My hands and arms felt swollen (they aren't visibly swollen though). My skin was starting to do that burning thing it does in a flareup (at least there was no itching!). My muscles felt like they were being pulled out of my body. My larger muscles, like the thigh muscles and the shoulder/upper-back muscles felt like they were being scraped off my skin with a flat, dull, burning blade.

After almost two hours, I got out of bed. And that brings us to now- closer to 1 AM than when I started this blog post and two more 5/325 Hydrocodone tablets (approximately seven hours after my normal nightly dose). My hands still feel swollen and stiff and my joints are still aching. But the burning pain is starting to subside. This strawberry Jolly Rancher hard candy tastes terrible. The music I'm listening to is awesome (MKIII by Steam Powered Giraffe) and I'm feeling kind of hungry. But I don't have anything in the house that I can eat without having to 1- get up to go get and 2- cook it.

And, I'm not the least bit tired. But at least I'm wearing this awesome hat, which is the one I'm wearing in my profile photo here. That's right, I wear my awesome accessories when I feel terrible because I like them and I will do every little thing I can do to make me feel better.

Now that I've passed the 1 AM mark because I was getting the links to the various things I linked to up there, the Hydrocodone has helped a little. This raspberry Jolly Rancher isn't much better than the strawberry one. The music is still awesome and so is my hat. (also- I just realized that my hands and fingers feel this way because of the Reynaud's that was triggered by the bitter cold Monday afternoon while taking photos).

I also remembered there's some frozen pizza in the kitchen. That's pretty much the least amount of work for something edible. Throw it into the oven and then sit down for 20 minutes.

Now if I could get to sleep, all of Tuesday's problems would be better.

And because I mentioned them, here are a few of the photos I took- snowflake macros. If you'd like to see more (or see these larger), just click a photo, it'll take you to my Flickr.

Almost gone again

Another almost-ornament

Like glitter

Snowflake cluster two

For size reference on how tiny the snowflakes were and look, my fur-trimmed fingerless gloves from The Sheepskin Shop at the Bristol Renaissance Faire. I had to switch to auto-focus to get this shot and the lens chose to focus on the fur trim on the gloves instead of my fingers.

For size reference

Tuesday, October 9, 2012

Well, here's a kink in the garden hose.

I really have no idea what the hell that title means.

October 6th and 7th found me out at the Stronghold Olde English Faire. It wasn't just "cooler weather", it was downright COLD! And oh, boy, was it wonderful! Sure, I was wearing my ineffective cloak and not-period fingerless gloves (I had to keep my fingers free for photo-taking), but the fact that I wasn't dying of heat exhaustion or having a flareup from the humidity was enough for me to love the day.

Till I sat down for any extended period of time and then tried to move. Turns out, this fibro-beast doesn't like the cold weather any more than it likes the hot weather. This whole year has been a disturbing visit into chronic pain hell from whence I have no escape! (did you hear thunder and did my words echo? No? That's it, I'm firing the sound crew, they do nothing!). Luckily, on Saturday, I had the help of an armored escort. He helped me to my feet when I needed help standing up. Would you like to see a photo of him? Of course you would. I took this photo last year (2011) at Bristol. This was actually the day we met.



If not for his hand at times, I wouldn't have been able to stand up. The cold didn't just "settle in my bones", as I heard my elders say numerous times. The cold soaked into my muscles and my bones and set up tents, staged a protest, burned some effigies of what a pain-free existence used to be. The cold marched on the streets and stormed the castle. The cold intercepted the game-winning touchdown and ran it back down the field while my team floundered like so many... uh, flounders on the field.

You get the picture.

I had trouble falling asleep, because the cold made everything tighten up and the muscle relaxers did nothing to help. Sunday at Stronghold, I had my daughter with me and I took pain meds upon arrival at the faire. It helped a little. It was also not as cold as the day before.

So, what I take away from this past ten months...

The weather changing can trigger a flareup.

Humidity can trigger a flareup.

Heat can trigger a flareup.

Cold can trigger a flareup.

Physical activity can trigger a flareup.

A butterfly flapping its wings in New Cumbria can cause a flareup. (I don't even know if that's a real place. Maybe Cumbria isn't all that new, who am I to judge?).

So, basically, I need to live in a pressurized, climate-controlled environment and never move. Never get up and walk around. Never go outside. Never do anything. Never see anyone. Never, never, never, never.

Fuck that noise.

I spent three goddamn years trapped inside my house, inside this stupid body, at the will of a doctor who just wouldn't give me that much-needed consultation letter. I am not locking myself in the house and missing out again. I have no idea what can be done for this- I have a followup appointment on Thursday- but this ridiculous disease is not taking my life from me. I let it take enough from me.

So, I'll muster through. March on. Carry on and keep bitching.

I have another faire this weekend, one I've never been to and I can't wait. By the way, here's a link to the photos from Stronghold Olde English Faire in Oregon, Illinois.